Thanks for your drops of love
The following list contains the names of persons, associations, institutions etc.. who have given their major contribution to the success of the case of ENEA: contribution aimed at obtaining and ITALY shots often seen in a 'new drug' on the basis of plasminogen, which is' a very important factor coagulation but which, to date, do not know the exact function.
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Day May 25, 2005 ....
May 25, 2005 –
After a year of misdiagnoses and malpractice, from a number of medical specialists in Sardinia, including a primary ophthalmology Ozieri, given the continuing and growing Deterioration of the situation of our son and we Parenting of Enea decides to look for useful data the problem of ENEA, in person, with the help of the Internet!
Today, May 25, 2005: We start the biggest battle of our lives:
is not an easy task for simple two parents who are not doctors !
We must discover the name of Enea's disease, treatment and medicine ... good for Enea! After performing many specialist ..... bankruptcy! hundreds of dollars spent for nothing ....... believing in knowledge / expertise of a primary ophthalmology well known in Sardinia that Enea has done little, in fact, probably, with his faults diagnostic and therapeutic may have triggered the disease itself ...... after surgery .... we parents ....., deeply disappointed and upset, we went on the field .... in person! We discovered during our research that, if the master had acted with knowledge and understanding and with honesty and humility ..... and it was documented as we did parents
perhaps we would not be the trigger of the disease of ENEA !
If the Primary Ozieri had studied .... and then carefully read the literature available ON-LINE on the Internet, [that is, with free access for a fee (as we did the parents)] and had read the documentation in the journals. .... of Ophthalmology, which speaks as spouses Lignea since 1933, probably not ...... erred PROFESSIONAL COSI 'GRAVE, to deserve, in our opinion, the radiation IMMEDIATE ,,,,,, without appeal !!!!!! The surgical removal of membranes designed ..... that in cases of Conjunctivitis Ligneous ...... must be avoided, it is a serious mistake
.... of NOT COMPETENCE !
More so if the person committing it is a Primary. But the worst is that the primary ..... ..... without certainty about the disease worked anyway: wrong diagnosis, treatment and input!
We do not think that the rarity of the disease could justify the failure of the primary, because we parents can not imagine that .... well we do another job after only a few days of research on the internet [completely ignorant of not only ophthalmology but also general medicine] we found out before him
(perhaps still does not know the name of the disease of Enea)
........ the disease name of our son !!!!!!!!!!!! !
All this is really absurd ....... but unfortunately it is true !
this scenario is beginning ... the case of Enea !
Opened the case of Enea [ENEA'S CASE]
THE MEYER [Pediatric Hospital in Florence where we decisis to cure Enea]
suspicion that it was of LIGNEOUS COJUNCTIVITIS [LINK in the web site]
..... a very rare disease. ................
But it prefers to await the results of histological examinations in the meantime you change therapy: heparin eyedrops and idracemi heparin. Such therapy will continue until 6 July 2005, the day the pediatrician Enea, after review, we recommend re-introduce the Tobral in therapy. During the period between the two dates, a specialist in oftalmologia_ United States (HUTA), Grandpa Dave, our dear family friend, tells us (after seeing pictures of Enea published by us in a special area of our web domain (www.budoniambiente.org) that they are, almost with certainty, Conjunctivitis wood (Ligneous Conjunctivitis). Reporting to Dr. Jacopo Secci Hospital Meyer, the news.
AND 'FROM THIS MOMENT TO BEGIN our research on LIGNEOUS CONJUNCTVITIS and treatment possible ....
After exhausting and grueling search the web and after satabilito contacts around the world (... The year was 2005) with the most knowledgeable in the world's Disease Enea professors, scientists, pharmaceutical companies, chemical laboratories, private ... doctors etc ... are not slow to understand, now, that our children, to heal, he needed only one thing: the CORRECT DRUG!
The drug was correct and is the .....Plasminogen Drops !
Our deduction was too LOGICAL ....... according to records collected by us. ... Now Enea had already tried all the existing treatments for this disease ..... recommended, but with bad results, and in some cases with negative effect of the entire clinical picture! left was .... plasminogen Drops, a drug created in the laboratory and tested in 2002 in Canada, three cases of Ligneous Conjunctivitis.
[visit our website in the section for further details: Plasminogen drops.
We had the formula for the correct construction of the drug .....
We parents of Enea, by now, we had already collected a large amount of scientific information so that NO ...... anyone in the world could tackle our deductions "pragmatic "......... resulting from scientific truth incontrovertible written and published by Great Physician and Professor of Planetary undisputed fame!
The Last Chance ... for Enea in the opinion of us parents .... and beyond!
It all seemed much easier.
Enea getting worse!
After launching our cry for help to search for the availability
of plasminogen useful in providing the drug for ENEA, we discovered that:
NO House or Pharmaceutical Pharmaceutical Laboratory
(ALL OVER THE PLANET )....
...... built or sold Drops human plasminogen (Plasminogen-Drops) !
And nobody was willing to create it .... for reasons of ethics, technical, economic ETCC .....
(The Plasminogen is a blood product .........
then the use of this is severely constrained by very strict regulations
on the famous International Laws: Good Use of Blood)
For us parents ..... Enea is a real joke!
Unlike several specialists interviewed, we parents,
with our own resources and knowledge we could not find the drug useful for our kids,
and even Formula to build it,
the scientific evidence of effectiveness ETCC .. and then find that:
not exist on the market (even today 20/11/2009) not only drops .....( Plasminogen-Drops)
but even the ingredients of the eyedrops:
which is the "Human Plasminogen" suitable for use on humans!
Plasminogen there was and still only human (or animal) ...
but of which it is only approved for use only for "clinical use and / or diagnostic;
(So ..... NOT HUMAN )
Thus was (and is still impossible: January 26, 2010 ......)
get anywhere in the world ........
THE CONSTRUCTION OF A Eye drops having as active ingredients .... the Human Plasminogen !
Ment would then be this active ingredient must be included in eye drops !
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In essence: we understood many things, perhaps too :
1)
we understood that there was a last "chance" for groped Far Healing Enea (Year 2005) !
2) we understood that the Last "chance" was repeated a "trial" made in Canada in 2002 !
3) we understood that there was across the planet ..... one mL of Human Plasminogen suitable for use in humans (Indeed, it was specifically prohibited the use on humans)
4) we understood that the disease was so rare Enea ....... we had difficulties to find scientific information even with the most sophisticated search engine on the Internet .....( 2005) and that little useful information found .... were all strictly Costs (15 / $ 30 for article)
5) we understood that the Rare Disease of Enea (Ligneous Conjunctivitis) was so rare .....
not even be included in the Data-Base the world's most ...... ..... dedicated to rare diseases
(See For example, Orphanet ... that put this disease in its Data Base .....
only after our report ..... even after years, our reported [3 years later] !!!!!!)
6) we understood that there is no limit to the presumption Ignorance ... ....... ...
the lack of humility by doctors (of many .... too many doctors)! several doctors
(Ophthalmologists / Ophthalmologists and the like) known and unknown .....
in Olbia, in Ozieri and Sassari (Sardinia), have seen and touched with Enea's case ....
when trying to understand at least the name of the disease!
Every individual: 100 € ....... many visits INVOICE [in black]
,,,,, at their private studios .... because public hospitals
in which they operate do not have the right .... machinery [we were told]!
These doctors have made mistakes in diagnosis and treatment given to Enea!
Course, and not take much to understand, with their diagnostic errors, with subsequent therapy ...... flawed logic,
and with assistance .... . .... surgical logically incorrect:
Waging a latent illness did ..... and most likely (according to scientific knowledge today that talks about this disease that, although rare has been known since 1847
[
link Bibliography in the site: http://www.budoniambiente.org/ligneous-conjunctivitis/bibliografia.htm)
would not be demonstrated in 'entire arc of a life ....
WAS NOT TOUCH ANYTHING!
NOT HAD ..... removed with tweezers secretions wooden ones !
NOT HAD TO PERFORM ..... surgical removal of the membrane intended!
WERE NOT RUN ..... surgical removal of the membrane targeted ....
subjecting a child of few months of life .... to a general anesthetic!
7) .... we understood that the pharmaceutical ALL .....
( but also lots of small hospital laboratories and private laboratories)
could easily gear up or were already in possession of means and resources to immediately build the drops for Enea .... according to the formula presented by us ..... easily!
But despite this, many homes Famaceutiche and others have deluded ...
we wasted so much precious time, others have responded immediately to the .... unavailability:
Bayer, Sanofi-Aventis, Roche, ITALFARMACO and other .. .. .. .. .. !
Who will answer many of these gentlemen ? .....
....about their work ?
Unfortunately .....
in this vale of tears can (if they want)
to respond to their own conscience!
- Certainly ........ will (willingly or not) to respond to God!
- Then, we parents of Enea !
- Then, the trial courts of men !
- Then, in modern and classical Hippocratic oath .....[]
- Then, in their own ...... in their perfect solitude.
Hoping to have at least one drop of faith, which is very difficult, given the way they act.
Who failed to pay !
The price is very high, we are sure.
We parents of ENEA alone to trust in God .... these men!
We are not interested judgments of courts composed of men.
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>>> [ September 18, 2006 ] : WE WON !
LELLE: ABBIAMO VINTO !LELLE: HEMOS VENCIDO! Y' UN DIA DE INMENSA ALEGRIA
EL COMITE' 'ETICO del MEYER: Ha aprobado, el 18 de SEPTIEMBRE de 2006, a la unanimidad el Protocolo Kedrion.
FUE EL 'ULTIMO PASO..... para empezar la TERAPIA para Eneas!
Demasiados otro ENEAS necesitan ti.
Ahora que estas en Argentina, anoro demasiado tu;
Pero acepto el sufrimiento de sentirte lejano porque se' que muchos ninos necesitan tu ayuda.
Lelle: eres GRAN HOMBRE
Hola mi fratellino.
Tu Aky (18 settembre 2006)
Grazie Lelle...
The day will be September 18, 2006 'a day to remember for us all,
for ENEA Eneas and all the world on this day the Ethics Committee of the Florence Meyer,
unanimously agreed': the protocol proposed by a Great House Pharmaceuticals: KEDRION S.p.A. !
The last battle to begin therapy with the blood product Plasminogen: e 'was won!
THANKS TO ALL OF YOU.
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>>> [ November 25, 2006 ] : initiating therapy ... !
Therapy and 'began in Florence,
at the Meyer: November 25, 2006 at 11.45 am, the day after: November 26, 2006 ......
12.00 am: in the left eye of Enea and' "miraculously" disappeared a large mass of "pseudo-membrane"
and 'practically cured!
The right eye shows improvement!
EVERYTHING': in just two days of therapy!
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>>> [ January 9, 2009 ] : Therapy .... continue !
therapy continues ... in Olbia.The results continue to be simply amazing!
The effectiveness of eye drops and 'more' that "amazing"!
Thanks to the efforts of KEDRION, which, together with Enea have realized a dream:
soon ... ENEA others can use this drug: The European Commission, following a positive opinion by the European Agency for the Evaluation of Medicinal Products (EMEA decision: C (2007) 3840 of 3/08/2007),
granted the designation orphan drug Human Plasminogen in the form of eye drops
used for treatment of conjunctivitis Lignea realized by Kedrion.
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>>> [ January 9, 2009 ] :
KEDRION: AIFA’S INCENTIVES
TO SEVEN INVESTMENT PLANS
[......] Incentives have also been earmarked for investments in new products, in particular the development of a new hyper-immune immunoglobulin preparation that will add up to the immune-prophylaxis and immune-therapy portfolios for preclinical studies on ATIII and phase-I and phase-II clinical tests on human anti-tetanus intramuscular immunoglobulin, nano-filtered Factor IX, human immunoglobulin anti-hepatitis B
and human Plasminogen.
Finally, AIFA will grant incentives to research on plasma proteins, Plasminogen,
Factor II, Factor H, ADAMTS-13 and Factor V,
and clinical tests for the treatment
of the rare disease
Ligneous Conjunctivitis with Plasminogen.
KEDRION Communication Area [09/01/2009]
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Thank God
Our most 'important thanks and' turned to God.We pray to God every day that 'can we reward you for your drops of love :
- MICHELE PORCHEDDU - uncle Eneas"
- Dr.Neri Pucci - Ospedale Pediatrico Meyer - Firenze"
- Dr.ssa Manuela Albisetti" Universitts-Kinderklinik Steinwiesstrasse-Zrich
- Dr. Arturo Adami and Kedrion S.p.A."
- Dr. Luca Barcella - Istituto Mario Negri"
- Prof. Dr. Volker Schuster -Univ.-Kinderklinik Oststrasse-Leipzig"
- Prof. Dr. Stefan Seregard - St. Erik Eye Hospital"
- Dr. Stefano Deliperi - Presidente del Gruppo d'Intervento Giuridico"
- Gruppo d'Intervento Giuridico"
- Dr. Antonio Addis - AIFA"
- Regione Autonoma della Sardegna"
- Istituto Mario Negri"
- AIFA - Agenzia del Farmaco"
- Dr.ssa Luciana Campa - Ospedale Pediatrico Meyer - Firenze"
- Dr. Jacopo Secci - Ospedale Pediatrico Meyer - Firenze"
- Dr. Roberto Caputo - Ospedale Pediatrico Meyer - Firenze"
- Dr.ssa Stefania Puorro - Giornalista de LA NUOVA SARDEGNA"
- Dr.ssa Teresa Fantasia - Giornalista di RADIO SOBERANIA - Sardegna nel Cuore "
- Dr.ssa Elena Febbrini Del Magro - Ospedale Pediatrico Meyer - Firenze"
- Dr. Gianpiero Scanu ( Sottosegretario di Stato alle Riforme e Innovazione nella P. A.)
- Dr. Giovanni Battista Cherchi (Direttore Generale ASL n. 2 - OLBIA- "
- ASL n. 2 - OLBIA- "
- Laboratorio Analisi - Ospedale Giovanni Paolo II - OLBIA
- Dr. Paolo Tecleme - Ospedale Giovanni Paolo II - OLBIA
- Dr.ssa Viviana Puggioni - Ospedale Giovanni Paolo II - OLBIA
- Dr. Prof. Riccardo FROSINI - Ospedale Pediatrico Meyer - Firenze"
- Dr. Bruno Noccioli - Ospedale Pediatrico Meyer - Firenze"
- Dr.ssa Elisabetta Lapi - Ospedale Pediatrico Meyer - Firenze"
- Dr. Franco Bambi - Ospedale Pediatrico Meyer - Firenze"
- Comitato Etico Meyer - Firenze"
- Ospedale pediatrico Meyer - Firenze"
- Sezione Pediatria Medica A - Ospedale Pediatrico Meyer - Firenze"
- Ospedale Giovanni Paolo II - Olbia "
- Dr.ssa Tefs Katrin" Institut fr Humangenetik der Universitt Leipzig
- Dr. Patrick Watts"
- Dr. L. Bajzar"
- Dr.ssa TEA OGGIANO - ASL n. 2 - Farmacia - OLBIA- "
- Dr.ssa Tiziana Murgia - Pediatra di Enea "
- Dr. Salvatore RUIU - ASL n. 2 - Oftalmologia - OLBIA"
- Pietrina Murrighile - Presidente della Provincia di Olbia/Tempio"
- Dr. Roberta Ciaghi"
- Prof. Roberto Padrini"
- Dr.ssa Domenica Taruscio"
- DAVE HATCH"
- Alberto Porcheddu - Zio di Enea "
- Dr. Jan Ulrik Prause"
- Adriano Ranvier"
- KEMPBOY RAN"
- MD Amy Shapiro"
- KHALID F. TABBARA, MD"
- Dr.ssa SIMONA SFORZIN"
- Dr.ssa Adele Misticoni Consorti"
- Dr.ssa Maria Teresa Sartori"
- Dr. Dave Ginsberg"
- Dr. Lore Gijsen"
- Dr. Chuck Mosher"
- Dr. Lore Gijsen"
- LA COMETA - Olbia"
- Ospedale S.Giovanni di Dio - Rep. Farmacia - OLBIA"
- Ospedale Civico di Sassari - Rep. Farmacia - SASSARI "
- Dr.PATRICK WATTS "
- Dr.PALANISAMY SURESH"
- Dr.EEDY MEZER"
- Dr.ANNA ELLS"
- Dr.LAZLO BAJZAR"
- Dr.VELMA MARZINOTTO"
- Dr.MAUREEN ANDREW"
- Dr.PATRICIA MASSICOTLE"
- Dr.DAVID ROOTMAN"
- I NONNI DI ENEA: Luigi e Maria"
- ZIO TORE E ZIA AMANDA - Pro-Zii di Enea "
- SALVATORANGELO PORCHEDDU - Pro-zio di Enea"
- Dr. J. Pruzon - Ophthalmology, Univ Med & Dentistry NJ, Newark, NJ "
- Dr. M. Gonzalez - Gronow - Hematology, Duke University, Durham, NC "
- Dr. H. Mohtaseb - Hematology, Hematology Oncology Associates of North Jersey, Wayne, NJ"
- Dr. D.S. Chu - Ophthalmology, Univ Med & Dentistry NJ, Newark, NJ"
- La Chiesa di Gesù Cristo Dei Santi Degli Ultimi Giorni - RAMO DI OLBIA"
- PINO PIGNATTA - Autore di: SANGUE E AFFARI - Fratelli Frilli Editori S.r.l. GENOVA;"
- STEFANO BERTONE - Autore di: SANGUE E AFFARI - Fratelli Frilli Editori S.r.l. GENOVA;"
- Fratelli Frilli Editori S.r.l."
. Margie Di Danieli e il figlio Dante
. Antonella, Francesco e i loro splendidi figli: Marco e Federica
. Rosangela Porcheddu - Zia di Enea
- I NONNI DI ENEA: Arcangelo ed Elisabetta"
. Zio Claudio e Zia Annalisa
